Helping families find needed services
When you are seeing patients and want to give them references
to local community, perhaps state, or even national resources, you want
that information at your fingertips. Maintaining up to date listings of
resources is very difficult and time consuming.
The Arc of Illinois web site offers the Illinois Life Span
Statewide Information Resource & Referral directory with an expansive
database of resource information. In collaboration with DSCC, the Illinois
Life Span Project is expanding to include many more resources throughout
the state for children with special health care needs. This database will
soon be populated with the resources known to DSCC’s care coordinators
from all 13 regional offices. In addition, several other organizations
are planning to share their resource information with the Illinois Life
Span Project. Please explore the Illinois
Life Span web site now so that in the future, as it becomes more populated,
you will be knowledgeable about this resource.
Learning more about the resources located within the communities
your practice serves can also help you to remain informed about valuable
services and resources available for families. One way to elevate your
practice involvement within the communities you serve is to develop working
relationships with established community based organizations like the
local health departments, Child & Family Connections (CFCs) for Early
Intervention, social service agencies and other health promotion organizations.
This may sound daunting and unrealistic, but it can be something your
practice undertakes over a realistic length of time. It won't happen overnite,
but it can happen gradually and within the capabilities and limitations
of your practice.
Or, you may know of a community association that you could
join whose membership is comprised of many health and social service organizations.
Such associations can help your practice to become knowledgeable and involved
in issues affecting those you serve in your communities.
Another source of information about community services and
organizations is the Division of Specialized Care for Children
(DSCC) through its 13 regional offices in the state. DSCC is the Title
V Program for Children with Special Health Care Needs (CSHCN) in Illinois
and is administered through the University of Illinois at Chicago.
Over one million families have been served by DSCC since its inception
in 1937. Each year over 20,000 families are served through a network of
13 Regional Offices with a care coordination staff having backgrounds
in nursing, social work, speech pathology or audiology.
The Division's staff are knowledgeable about the community resources
and organizations that assist and serve children with special health care
needs, including educational, therapeutic and social service providers.
You can use the DSCC web site, Find
an Office web page , or you can call 1-800-322-3722 to locate the
office serving your area.
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DSCC provides care coordination for all medically eligible children and
financial assistance for medical services to those families with an annual
income under 285% of the Federal Poverty Level. Eligible conditions must
be chronic, amenable to treatment, require long-term specialty care and
fall within one of the following categories:
- Cardiovascular Impairments
- Cystic Fibrosis
- Craniofacial Anomalies
- Eye Impairments
- Genetic & Metabolic Conditions Leading to Disability
- Hearing Impairments
- Hemophilia & Disorders of Coagulation
- Nervous System Impairments
- Organic Speech Impairments
- Orthopedic Impairments
- Urinary System Impairments
DSCC’s mission focuses on public service, education and research
as a basis to provide, promote and coordinate family-centered, community-based,
culturally competent care for eligible children with special health care
needs in Illinois. The programs and services provided by DSCC are described
The Core Program
offers care coordination and cost-supported diagnosis and treatment for
children with chronic health impairments determined eligible for program
support. DSCC supports non-investigational treatment recommended by physician
specialists, such as therapy, medications, specialized equipment, and
supplies. Application forms are available on the Core Program page of
The Home Care
Program offers care coordination and support for in-home nursing care
of technology-dependent children who would otherwise have to remain in
a hospital or skilled nursing facility. The Division of Specialized Care
for Children (DSCC) operates this waiver program on behalf of the Illinois
Department of Public Aid (IDPA). Application forms and more information
are available on the Home Care Program page of our website.
The Children's Habilitation
Clinic, formerly known as the Center for Handicapped Children, is
located on the west campus of the University of Illinois at Chicago, within
the Children and Adolescent Section of the Out-Patient Center. This location
allows collaboration with other specialists and primary care providers.
The Clinic provides comprehensive diagnostic services to children with
complex disabling conditions and provides ongoing rehabilitation and developmental
management to those children to age 21. There are approximately 1600 patient
visits completed annually.
The Supplemental Security Income - Disabled Children's Program
has been administered by DSCC since 1978 to provide rehabilitative services
to children less than 16 years of age who are eligible for the Supplemental
Security Income (SSI) program. DSCC provides information about and referral
to community resources, including referrals to Early Intervention or preschool
programs when appropriate, and DSCC Core services as described above.
The SSI program is a Federal assistance program administered by the Social
Security Administration (SSA) that guarantees a minimum level of income
for aged, blind, or disabled individuals. For more information about the
SSI program for children with disabilities, visit the federal government's
Social Security Administration web site on SSI
Benefits for Children with Disabilities.
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