This alphabetical list of resources is organized into categories. You
can choose the type of resources you wish to view by selecting a category
from the drop-down list and clicking the Submit button. The General Resources
category will display the entire list of resources. Or, you can choose
to search the entire listing of resources for a specific term - this will
search both the title and the description of each listed resource for
|Please Note: This page
has links that will take you outside the DSCC web site. DSCC does
not control and is not responsible for information outside the DSCC
529 College Saving Plans
College Illinois! is a prepaid tuition program. Benefits can be used at any college or university in the country & there are some great tax incentives.
A Guide for Professionals Serving Youth with Educational & Career Development Challenges
A guide to assist youth with developmental disabilities by Timmons, Podmostko, Bremer, Lavin & Wills (2004). National Collaborative on Workforce and Disability for Youth.
A Workbook for Your Personal Passport
The Personal Passport can help an individual with a developmental disability advocate for the things that are important to him/her and learn ways to share that with others in a meaningful manner.
AAP Medical Home
Provides support to physicians, families, and other providers caring for children with special health care needs.
Aaron's Tracheostomy Page
Information on tracheostomies given through the parents' perspective. This site is dedicated to parent-parent support.
The ABLEDATA database contains information on more than 25,000 assistive technology products including detailed descriptions of each product, pricing, and company information.
Sign language reference guide.
Access for Southern Illinois
Southern Illinois community resource directory! AccessSI lists over 1010 agencies and organizations that provide services for southern Illinois counties.
Accessible Playground Equipment
website lists companies that provide handicap accessible, playground equipment, accessories and components and products.
A popular consumer health/medical education site. Includes sections on men's, women's, and children's health. The "Health Illustrated" section features full-color medical artwork.
Adolescent Health Transition Project-Washington State
Information on health care transition provided for youths, families and professionals.
Website designed to assist local communities for supporting children and youth during out-of-school hours. Over 100 Federal programs to support children and youth is provided.
Air Transportation: Charitable Resources
Bridges4Kids web site provides a list of charitable organizations that will provide free air transport for needy individuals to access needed health care services.
All Kids (Formerly KidCare)
Information about Illinois' health insurance program for children through age 18. Low-income working families may qualify for help in paying insurance premiums.
Almost Home Kids Center
Almost Home Kids is a 10-bed ranch home, set on 2.5 acres of land, created as a friendly and safe environment offering Respite Care and Transitional Care for children and youth with special health care needs and their families.
Alphabetical Index of Terminology
Medical equipment and pharmaceutical manufacturers site contains information and hyperlinks
AMA Physician Select
AMA Physician Select provides information on virtually every licensed physician in the United States and its possessions.
American Academy of Allergy, Asthma and Immunology
Information about allergies and asthma. You can find out the pollen and spore counts for the area in which you live or plan to travel to.
American Academy of Pediatrics
The American Academy of Pediatrics Pediatrician Referral Service is intended for use by the general public to allow them quick access to information on pediatricians.
American Bar Association Center for Pro Bono
Links to information on free legal assistance with the SSI appeal process and other related civil matters.
American Board of Medical Specialties
Access to board certification status, location by city, state, and specialty of any physician certified by one or more of the 24 Member Boards of the ABMS.
American Cleft Palate-Craniofacial Association (ACPA)and Cleft Palate foundation (CPF)
The association is a non-profit, professional association of over 2,600 individuals in over 40 countries who are involved in treatment and/or research. Publications can be obtained.
American Dental Association
The ADA is the professional association of dentist. The site is comprehensive offering information for the public and professionals. It includes a search tool to find a dentist in your area.
American Sign Language Browser
This site allows you to learn sign language.
Americans with Disabilities Act - ADA
U.S. Department of Justice,
Americans with Disabilities Act,
ADA HOME PAGE
The majority of these trykes are purchased by volunteer members of the AMBUCS organization and donated free of charge to financially-needy children.
Answers for Special Kids
A non-profit organization established to support & educate families of children with special needs and learning differences. Located in Evanston, IL.
ARCH National Resource Center for Respite and Crisis Care Services
ARCH National Resource Center for Respite and Crisis Care Services is a support service for families. Can locate respite providers by location.
This is an online curriculum for American Sign Language
This is a site for teachers who are teaching the hearing impaired.
Attention Deficit Disorder Resources
This site is a national non-profit organization that helps people with ADD/ADHD achieve their potential through education, support & networking.
The Center for the Study of Autism is a comprehensive page with information and resources.
Autism Fact Sheet
A fact sheet that discusses the different components of autism.
Autism Society of America
A web site that addresses autism and its components.
This site is now the nation's leading nonprofit organization devoted to autism. Check out the fundraising, science, and advocacy efforts.
Bazelon Center for Mental Health Law
Excellent resource on childrenís mental health, childrenís SSI and advocacy issues.
Best Practices-Transition Services
Best Practice for transition services from school to adult life from the consumer/family viewpoint.
Brain Injury Association of Illinois
The Brain Association of Illinois is a not-for-profit, statewide membership organization ocmprised of people with brain injuries, family members, friends and professionals.
Bridges to Healthy Smiles
About the Bridge to Healthy Smiles campaign: Bringing Dental Care to More Illinois Residents
Bright Futures is a national child health initiative to promote and improve the health, education, and well-being of all children, families, and communities.
Bright Futures Family Pocket Guide
This guide is a quick reference for families, highlighting important child health topics. It is organized according to age group/stage of development.
Captioned Media Program
The program provides users with free loan of videos and other media. Some Spanish-language captioned media.
Websites can help connect family and friends about a health challenge.
Center for Disease Control
ODH works to prevent secondary conditions. Mission is to maintain and improve the health of families, adults and children with disabilites
Centers for Medicare and Medicaid Services
A resource to search Medicaid Waivers for each state. Put the state in the search field.
CenterWatch Clinical Trials
Find information related to clinical trials as well as new drug therapies recently approved by the FDA.
Chicago Asthma Consortium
For those interested in asthma, identifies educational programs, information, community agencies and offers resource directory for Chicago area.
Chicago Dental Society
This site is a directory for locating dentists in the Chicago area
Children with Spina Bifida
Family support, assistive technology, educational issues and many other resouce links can be accessed from this site
Childrens Charities of America
A comprehensive site that allows one to search for charities nationwide.
Clinical Trials-National Institutes of Health (NIH)
Through its Library of Medicine, NIH has developed this site to provide information about clinical research studies.
Special Needs ListServs for families. Also resources on special needs and foreign adoption.
Commission for CSHCN Youth Transition-Kentucky
This site provides linkages to teaching sheets, life maps and other transition materials and tools.
Compassionate Friends offers friendship, understanding, and hope to bereaved parents, grandparents and siblings. Information on local chapters is available.
Coordinated Care Record
Developed to help families record and organize information about their child's special health care needs, the pages can be easily maintained in a 3-ring binder.
Cross Cultural Care
Diversity Rx: Promoting language and cultural competence to improve the quality of health care for minority, immigrant, and ethnically diverse communities.
Illnois Department of Healthcare and Family Services contracts with DentaQuest for clients receiving AllKids or Medicaid.
This tool lets a person find a DentaQuest provider by using a search feature.
Department of Financial and Professional Regulation: License Lookup
Formerly known as Department of Professional Regulation. Information on licensure in Illinois for many professions including physicians, nurses and therapists.
Developmental Disabilities Services-Illinois
Information about IL Developmental Disabilities Service System including descriptions of residential programs, day programs and support services.
Developmental Disabilities Web Site and Hotline
Do you or someone you love have a developmental disability? If so, the Illinois Department of Developmental Disabilities (DDD) wants to hear from you.
Directory of State Title V CSHCN Programs
This website has links to info about each state's CSHCN program, contact information, and the criteria for program eligibility.
Disability Disclosure Workbook
Designed to help youth make informed decisions about whether or not to disclose their disability and to understand the impact of disclosure on education, work and social life.
Disability Info. Gov
This web page has assitive & information technology sites.
Disability Resources, Inc.
A nonprofit organization established to promote and improve awareness, availability and accessibility of information that can help people with disabilities.
Donated Dental Services
This website lists contact numbers for donated dental care serving people with disabilities.
Dr. Reddy's Pediatric Office on the Web
This Michigan doctor has created a web site which provides an extensive amount of useful information and resources on children's health.
Dreams for Kids Adapted Water Ski Clinic
Dreams for Kids welcome kids with physical disabilities to a day of a skiing clinic.
Drugwatch.com includes up-to-date information about prescription and over-the-counter medications and details about associated drug side effects to aid in the protection of patients and consumers.
DSCC Family Advisory Council
Find out more about the Council, whose members are selected to represent the diversity of Illinois children with special health care needs, and the work they do.
DSCC Family Handbook
This handbook answers the most common questions families have about DSCC services, and explains how to contact us for more information or assistance.
Early Child Education
A site that discusses educational information.
Early Childhood Intervention Clearinghouse
A project of the Department of Human Service and Public Health Association that provides library and information services.
Early Intervention Provider Handbook
This is an Early Intervention Handbook for Providers that gives descriptions of services and billing codes as well as policies and procedures. Any questions, contact 217-782-1981.
Early Intervention-Illinois Department of Human Services
Illinois' Early Intervention Service System serves children less than 36 months of age with disabilities or developmental delays, or who are at risk of substantial delays.
Educational Rights and Responsibilities
Resource for parents of children in special education. (Parents' Rights)
Equip for Equality
A Federal protection and advocacy system for Illinois citizens with disabilities. They offer self advocacy training, one-on-one self advocacy assistance, legal and public policy advocacy.
ERIC: Educational Resources Information Center
National information system on education, enormous special education database.
This site contains information for parents of children with disabilities and special health needs including feature articles, directory of schools, camps, and products & services.
Extensive information on health care policy for all ages, lots on Medicaid, SCHIP, helpful consumer publications and fact sheets.
Family Handbook on Future Planning
Handbook is a guide that helps families develop a future plan for their child with intellectual & developmental disabilities created by the ARC of the United States.
Family Manual for Transition to Work and Adult Services
Information on special education and transition planning; adult services/supports; and options and trends of services/supports for people with developmental disabilities.
Family Matters: Parent Training & Information Center
Family Matters provides information, referral, linkages, and training to parents, students with disabilities, and special education professionals.
Family Resource Center on Disabilities (FRCD)
The FRCD, organized by parents, professionals, and volunteers, operates a federally funded Parent Center that provides information, training and support services.
Very comprehensive site, many links, covers all aspects of parenting a child with special needs. Webmaster is a parent.
Family Village School: Transition
Provides links to transition-related articles, guides and websites.
Family Voices is a national, grassroots clearinghouse for information and education concerning the health care of children with special health needs.
FDA Homepage: U.S. Food and Drug Administration
Homepage for the Food and Drug Administration.
FDA Buying Medical Products Online
This site includes FDA tips and suggestions for consumers buying prescription and over-the-counter drugs on the Internet.
FDA: New and Generic drug approvals
This alphabetical listing covers FDA drugs from 1998 to present.
First Signs (Autism)
The First Signs Web site provides a wealth of vital resources, covering a range of issues: from healthy development, to concerns about a child.
Food Chaining with Cheri and Laura
Website to help parents investigate ways for feeding when the child is having difficulty with feeding. It is a good resource for any parent.
Give the Gift of Sight Program
Give the Gift of Sight is a family of charitable programs providing free vision care & eyewear to underpriveleged people in North America.
Great Lakes Disability and Business Technical Assistance Center
Materials on ADA and other legislation for people with disabilities. Services include tech. assistance, education and training, referral network and dissemination of materials.
A parent's guide to helping kids with learning difficulties.
Guidebook of Laws and Programs for People with Disabilities
This free guidebook of laws and pograms for people with developmental disabilities and information on many topics including care of children with disabilities, education and more.
Hands & Voices
A nationwide non-profit organization supporting families and their children who are deaf or hard-of-hearing.
Health & Disability Advocate
This organization is committed to protecting the rights of children, people with disabilities, & low income adults.
Health Care Bureau of the Illinois Attorney General
The Bureau responds to consumer complaints regarding the health care industry and enforces related Illinois consumer fraud laws.
Health Information for Teens with Chronic Health Conditions
The American Academy of Family Physicians has a web site for the whole family, including teens. The information includes childhood chronic conditions, their treatment and what teens can do to cope.
A family oriented site which lets users customize the home page with news and features targeted to their interests
US govt. web site with links to a wide variety of health and human services information sources. Links to online medical dictionaries, libraries, support groups, and other agencies.
Free objective report card on doctors, hospitals, health plans, homehealth agencies and nursing homes. Offers profiles of providers nationwide and has search capacity.
HealthSCOUT(TM) is a comprehensive site that brings you daily news and information about special interests related to healthcare.
Healthy & Ready to Work (HRTW)
Provides information and connections to health and transition expertise nationwide.
The site provides up-to-the-minute guidance on fitness, sports, oral health, emotional wellness and nutrition. It includes interactive content on developmental milestones, and an A-to-Z list of more than 300 health topics.
Hearing and Vision Connections (HVC) - Early Intervention Training and Technical Assistance
HVC is an information center and educator for both parents and professionals who have or work with young children with a vision or hearing loss.
Hearing Assistance National Programs
Programs that assist with purchasing hearing aids and other information
Information about home modifications can be obtained. Funding resources are listed. A library containing videos on home modifications can be accessed.
IFLOSS is a public-private partnership founded in 1998. The mission is to improve the oral health of all Illinois residents through advocacy and education.
Illinois Council on Developmental Disabilities
Promotes systematic change, capacity building and advocacy for persons with disabilities by funding programs and projects which serve to improve their lives.
Callers to 211 can get LIVE assistance with needs such as: food, shelter, counseling, income supports, employment, healthcare, and services for specialized populations such as the elderly and persons with disabilities
Illinois Assistive Technology
Illinois Assistive Technology Project (IATP) helps people find the types of assistive technology they need and provide lists of funding sources available
Illinois Department of Healthcare and Family Services
Formerly called Department of Public Aid (DPA). Information regarding medical assistance programs (including KidCare), child support and agency information is provided.
Illinois Department of Human Services
DHS services, documents, brochures and news can be found on this site. A list of DHS offices throughout the state is also provided.
Illinois Early Learning
This site is a source of evidence-based, reliable information on early care and education for parents, caregivers, and teachers of young children in the State of Illinois.
Illinois Employment & Training Center Network / Transition
One-stop shops providing workforce development services.
Illinois Families for Hands and Voices
This is a parent-driven, non-profit organization dedicated to help families with children who are deaf and hard-of-hearing.
Illinois Guardianship and Advocacy Commission
Established so eligible children and adults with disabilities could obtain legal advice & representation to enforce their rights protected by mental health laws.
Illinois Guide By Your Side
Provides Parent Guides to parents of children with hearing loss.
Illinois Health Connect
This site will take you directly to finding a healthcare provider. You just need to have the information to complete the login.
Illinois Interagency Coordinating Council
Established by the Interagency Coordinating Council Act, 20 ILCS 3970 to facilitate collaboration among state agencies around youth transitions to improve adult outcomes.
Illinois Network of Centers for Independent Living
INCIL is a source of information about the accomplishments of Illinois CILs and about issues to promote independent living for all persons with disabilities.
Illinois Parents is the information link to local programs, services, and community resources, for parents.
Illinois Power of Attorney Act
This link is to the Illinois Compiled Statutes, Article IV Power of Attorneys in Health Care.
Illinois Provider Directory for Children with Disabilities
This online directory can be used to locate providers serving Illinois children. Search by specialty, search by services, or search by city or county where you wish to obtain care.
Illinois School for the Deaf Outreach Programs
It provides free training on topics associated with hearing loss; Consultation and Technical Assistance,CPDUs,Information on Cochlear Implants
Illinois sibling centers for children with siblings that are Children with Health Care Needs.
Illinois Sound Beginnings
This website is to provide information that will benefit families with children who are deaf & hard of hearing
Illinois State Board of Education
This state agency provides information and resources on all aspects of education, including early childhood, general education, special education and assistive technology.
Jump start your career! You can make
it happen...create a career plan,
get an education, find a job.
Immigration and Naturalization Service
Designed to provide our customers with the most up-to-date information about the agency and the services offered.
A public health program that offers free optometric exams in the first year of life.
Infinitec Durable Medical Equipment Project
The Durable Medical Equipment Exchange is a service that connects people with disabilities to organizations, companies and individuals who have durable medical they can use.
Institute on Disability and Human Development
Institute on Disability and Human Development in the Department of Disability and Human Development. It is designed to give you updated information on our activities and resources.
Insure Kids Now
This new site explains Medicaid and CHIP which cover doctor and dentist visits. It also has a locator for those physicians that accept Medicaid and CHIP.
A joint venture of Aetna Healthcare and Johns Hopkins University. This site has the latest tools and references including dictionaries, database indexes, and hospital locators.
Internet Resources for Special Children
The IRSC is a non-profit web site, which provides parents, educators, medical professionals, and caregivers with information and links on topics regarding children with disABILITIES.
Kids As Self Advocates
KASA is a national, grassroots network of youth with special needs and our friends, speaking on behalf of ourselves.
All type of camps are listed according to region of interest. Information on many different type camps including: special needs camps, residential camps, day camps, and more can be accessed.
Created by medical experts, KidsHealth has accurate, up-to-date information about growth, fitness, lab tests, medical and surgical conditions, and the latest treatments.
Lets Face It
Let's Face It USA is a nonprofit network that links people with facial disfigurement and all who care for them to
resources that can change their lives.
LifeLine (formerly AirLifeLine) is a non-profit group providing people in medical/financial distress access to free air transportation (small aircraft).
This site teaches sign language.
Illinois Life Span is the statewide information and advocacy coordination system for people with developmental disabilities.
This is an international organization providing support to grieving families, volunteer opportunities, public policy and education, and programs to reduce infant and toddler death.
In a warm and comforting environment on the northwest side of Chicago, this 12 bed program provides transitional and respite care for medically fragile and technology dependent children.
Maternal Child Health Library
Wonderful information on a multitude of topics relating to maternal/child health and special needs.
Mayo Clinic Health Oasis
One of the best known consumer sources of health information. The library section has an extensive list of reference articles.
A WebRing is a site which provides links to other sites on a specific subject or topic. This WebRing lists other sites of interest to the Maternal-Child Health community.
Medical Home Initiatives
The goal of the program is to support and provide advocacy for pediatric health care professionals who care for children with special needs in managed care arrangements.
This site provides health news and resources produced by doctors. There is a database with information on 400 diseases and treatments.
MEDLINE database FREE of charge and has more than 9 million references to articles published in 3,900 biomedical journals.
Mental Health Services Knowledge Exchange Network (KEN)
KEN is a national, one-stop source of information and resources on prevention, treatment, and rehabilitation services for mental health conditions.
Mobile Dentists is a team of highly dedicated dental professionals committed to improving the oral health of those in need. Visit page for more information.
MSUD Family Support Group
The website includes information about the condition Maple Syrup Urine Disease.
My Special Diet
A website devoted to the management of a metabolic diet, information about products, recipes.
National Center for Cultural Competence
Supports family participation and satisfaction and strives to increase the capacity of health and mental health programs.
National Center for Hearing Assessment & Management
Supports early and continuous screening and works to ensure newborns with hearing losses are identified.
National Center on Physical Activity & Disability
Located within UIC, the Center serves as a national clearinghouse for resources on physical activity for people with disabilities.
National Consortium on Deaf-Blind
Clearinghouse is a federally funded information and referral service for children ages 0-21 years who are deaf-blind. Site provides access to a broad spectrum of information at no cost.
National Fatherís Network
Specifically for men who have children with special needs, information, advocacy and support.
National Heart, Lung and Blood Institute
Developed the standards of asthma management. Provides free educational materials to schools and families
National Immunization Program (NIP)
The Centers for Disease Control and Prevention (CDC) provides answers to your questions about immunizations.
National Information Center for Children and Youth with Disabilities.
A national information and referral center on disabilities and related issues. Our special focus is children and youth. Information is available in Spanish also.
National Institute of Dental and Craniofacial Research
The mission of the Institute (NIDCR) is to improve oral, dental and craniofacial health through research, research training, and the dissemination of health information.
National Organization Caring for Kids (NOCK)
The mission of NOCK is to improve the quality of life for special needs children through the use of assistive technology
National PKU News
The website provides information and resources on legislation and policy, diet, personal stories, scholarships, and research.
NECTAC: National Early Childhood Technical Assistance System
Information about early intervention, early childhood special education, parent involvement.
Information on drug assistance programs and how to request help. Contains index of available medications.
Newborn Screening: IDPH Genetics program
This explains the newborn genetics program.
Newsletter for Families
DSCC's Special Additions newsletter provides national and state information in Spanish and English for families of children with special health care needs in Illinois.
NORD: National Organization for Rare Disorders
Links and referrals for many rare disorders. Parent and consumer support.
Northwest Airlines KidCares
Northwest provides a program for travel for medical treatment for children under age 18 years. The airline encourages people to donate frequent flyer miles for this program.
Office of Disability Employment Policy
It provides national leadership by developing and influencing disability employment-related policies
Online Directory for finding community services for children and families
The Maternal and Child Health (MCH) Library has released a new edition of the Community Services Locator
Online Mendelian Inheritance in Man
A catalog of human genes and genetic disorders. Textual information, pictures, and reference information can be accessed.
Website developed by parents devoted to raising special kids with special needs
PACER: Parent Advocacy Coalition for Educational Rights
National "home" for Parent Training and Information Centers in all states. Lots of resources on special education, health care, transition and family support.
Parent & Educator Partnership
The Parent Mentor Project lists many educational and other resources for parents as well as a mentoring program.
A site sponsored by Ameri-Corp Speech and Hearing. The site provides pertinent information on Special Education and Gifted Education programs and services.
Parents Guide -Illinois State Board of Education (ISBE)
This guide informs parents and others about the educational rights of children with disabilities that receive special education services. Available in Spanish or English.
Parking Placard/Plates for Persons with Disabilities in Illinois
The Illinois Secretary of State provides online access to the application for a parking placard and/or license plates for persons with disabilities. Physician certification is required.
Patient Services Incorporated
This non-profit group helps with the cost of health insurance & pharmacy co-payments for persons with certain chronic illnesses. Help is based on medical & financial need.
PKU of Illinois
The Illinois PKU website includes information on diet, local resources, legislation, social events, and links to other sites.
Questions and Answers About Health Insurance
This is a consumer guide containing a general overview of health insurance plans
The Illinois Emergency Management Agency Radon program staff informs Illinois citizens about the risks associated with radon and how to reduce radon levels in their homes.
Red Cross of Greater Chicago
Includes a management program for groups of parents and children with asthma in Chicago area.
Region 4 Genetics
Learn about the newborn screening information in Illinois and bordering states in Region 4.
RxAssist can help you learn about ways to use pharmaceutical company programs and other resources to help reduce your medication costs.
Self Help for Hard Of Hearing People, Inc.
They strive to improve the quality of hard of hearing people's lives through education, advocacy and self help.
Provides information about the Choices program, special orthopaedic programs, and information about conditions, treatment and eligibility requirements.
Sibling Support Organization
The Sibling Support Project is a national effort dedicated to the life-long concerns of brothers and sisters of people who have special health, developmental, or mental health concerns.
SIU Medical Library
Resources from the library can be obtained. A list is provided that includes medical and scientific journals with abstracts.
Social Security Administration
Provides information about the Disability Determination process and Social Security Disability publications and information.
Special Child Magazine
On-line magazine by and for parents, has bulletin board, matching, seeks stories/pictures from readers.
Special Education Record Keeper
Record Keeper for special education meetings from ISBE.
Special Needs Resource Project
This site provides a basic guide for parents of children with chronic health issues, disabilities, and special needs.
Spinal Cord Injury Association of Illinois
A non-for-profit organization providing information & support resources for people paralyzed by trauma and medical conditions, family members & health care and related professionals that serve this SCI community.
This site has been created for teens with chronic and life threatening medical conditions, and their siblings. The goal of the site is to help teens connect with other youth like themselves.
State of Illinois
Links to state government and state agencies.
State of Illinois Comprehensive Health Insurance Plan
CHIP, a state program, to provide health insurance to residents who due to existence/history of a medical condition, are unable to acquire insurance.
State of Illinois Deaf & Hard of Hearing Commission
This site provides information for those who are deaf or hard of hearing or for those who need information about this population.
State of Illinois Health & Wellness
This site has the special state health care programs listed and links to them. It is a good site when you are searching for a state medical program.
This site is called FRIENDS and is the national resource and testimonies for stuttering.
The American Public Health Association
This site provides a forum for sharing the latest information on the federal managed care legislative debate.
The Autism Program
The Autism Program is an initiative that offers resource information & promotes best practice in the diagnosis, treatment and education of children with ASD.
The Boomer Esiason Foundation for Cystic Fibrosis
Foundation is a partnership of leaders committed to funding research for cystic fibrosis. Site offers resource information, current news, events and an on line store.
The Catalyst Center
National center dedicated to improving health care insurance and financing for CYSHCN. Look for Catalyst.
The Center for Technology in Education (CTE)
CTE improves the quality of life of children and youth with special needs through teaching, research, and leadership in the use of technology.
The Chicago Lighthouse for People who are Blind or Visually Impaired
The Chicago Lighthouse was founded in 1906 and has evolved into the most comprehensive private rehabilitation and educational facility in the nation dedicated to assisting children, youth and adults who are blind, vision impaired or multi-disabled.
The Council for Disabilty Rights
This list of resources includes federal, state and local agencies mandated to provide services to children with special needs.
The Humanitarian Foundation
The Humanitarian Foundation program helps cover the costs of dental treatment, including hospital and anesthesia costs, for children with Cerebral Palsy, Mental Retardation, Organ Transplants or Muscular Dystrophy and related neuromuscular disorders.
The Medicine Program
Program helps patients who may qualify to enroll in a patient assistance program. Prescription medicine is free to individuals in need if they meet the sponsor's criteria.
The National Lekotek Center
The Center provides family play centers and toy lending libraries that give children with special needs access to play to bring both joy and learning into their lives.
The Other Kid Workbook
This workbook allows siblings who have a brother/sister that is ill, an opportunity to express their feelings and thoughts.
The Topic: American Sign Language
This site has the basics in American Sign Language.
Ticket to Work and Self Sufficiency Program / Transition
A new program providing expanded access to employment services, vocational rehabilitation services, or other support services.
Tips for Preventing Dental Problems in Children
Children with health conditions are more likely to have dental problems. Here are some tips.
Information, support and linkages for all people interested and involved in transition. Free publications available
Transition Research Institute
Site promotes the successful transition of youth with disabilities from school to adult life, offering an abundance of information.
Transition-related Internet Resources
This document contains information on a variety of websites and other resources on transition, including the areas of health care, education, employment and independent living.
UIC Autism and Developmental Delay Center
It is a lending libray with over 700 resources on autism.
UIC Resource for Autism
A new resource center for parents of children with autism has now opened. It has a lending library and other resources
United Cerebral Palsy
United Cerebral Palsy (UCP) is the leading source of information on cerebral palsy and is a pivotal advocate for the rights of persons with any disability.
United Healthcare Grants
In January 2006, the UnitedHealthcare Children's Foundation was expanded to all 50 states.
In 2007 alone, the UnitedHealthcare Children's Foundation provided medical grants to 450 children.
Universal Telephone Assistance Program
Linkup and Lifeline are two federally funded programs that assist families with paying for telephone installation and monthly service. Eligibility requirements apply.
US Department of Education
Site focusing on national efforts to improve education, promote new initiatives and partner with families to benefit children.
Virtual Public Health Center
Site offers interactive anatomy, literature searches, world wide statistics, and more.
VISION USA helps people by providing basic eye health and vision care services free of charge to the many uninsured low-income people and their families.
WIC and DPH Formulas
Here is an updated list of formulas from WIC and DPH.
WIC Fact Sheet
WIC Fact Sheet discusses the program and gives delivery methods.
Wish Granting Organizations
Family Village offers this comprehensive web page describing the many "wish granting" organizations.
Young adult interested in being an e-mentor to others
Faye is a young adult who is disabled and interested in mentoring and coaching others on how to manage health and related needs.
Your Genes Your Health
The webpage focuses on several genetic conditions with explanations and illustrations of the genetics of the condition.
The listing of a resource does not constitute an endorsement of that
organization or group. Neither does an omission signify disapproval. The
use of any information is entirely the responsibility of the reader. You
are the ultimate judge in deciding whether the resource is appropriate
to your needs.