The role of the primary care physician in providing a medical home is to utilize critical supporting elements - basic knowledge, professionally endorsed policies, best practice models and community resources - while providing care that is accessible, coordinated, continuous, comprehensive, family-centered, compassionate and culturally competent.

The following topics, developed by the Utah Medhome Portal, will exemplify how the medical home model can be applied to the management of a specific chronic health condition in the primary care setting. Establishing a medical home ensures access to appropriate care and treatment and also provides for continuity of care. The content of the following topics may vary from state to state, or community to community, based on different resources or local policies.

Click on a link below to access a specific Medical Condition module.

Asthma
Autism Spectrum Disorder
Celiac Disease
Cerebral Palsy
Down Syndrome
Duchenne Muscular Dystrophy (1/3500 males)
Hearing Impairment
Hurler syndrome (Mucopolysaccharidosis type I)
Intellectual Disability / Mental Retardation
Neural Tube Defects
Neurofibromatosis, Type I
Seizure Disorder
Spinal Cord Injury
Traumatic Brain Injury

Information is also available about various Newborn Screening Conditions, including:

• Biotinidase
• Congenital Adrenal Hyperplasia
• Congenital Hypothyroidism
• Galactosemia
• Homocystinuria
• Maple Syrup Urine Disease
• MCAD & other Fatty Acid Oxidation Disorders
• Organic Acid Disorders
• Phenylketonuria
• Sickle Cell Disease & Other Hemoglobinopathies
• Tyrosinemia
• Urea Cycle Disorders

Other Resources
The Diagnosis Prevalence List on the Utah MedHome Portal allows you to enter your practice patient population size and reveals the projected prevalence data for a comprehensive list of chronic health conditions.

The medical and service needs of children with special health care needs are often complex and diverse. Such children often require services from a variety of sources, over long periods of time and at high cost. The Physicians Guide to Caring for Children with Disabilities and Chronic Conditions, by Dr. Larry Desch and Dr. Robert E. Nickel, provides valuable information and condition-specific care coordination templates for managing the care of children with special health care needs. These Coordination of Care Summaries are available on the National Center of Medical Home Initiatives for Children with Special Needs.

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